Skip to main content

Freedom Limits

Good essay on software for medical devices and the perils of that not being free. The reasoning makes sense in some situations but not all:

Free software in medical aids helps the patient, the environment, and the healthcare system. After all, the software in hearing aids, insulin pumps and pacemakers controls parts of our body. We should be allowed to control it. Software in medical aids has to respect our freedom! Free software can make the medical device last longer. The free software community can fix bugs and provide updates so that patients are not left at the mercy of the companies. Then, patients can choose to repair their device instead of throwing it away. Last but not least, long-time support can save the healthcare system and its patients lots of money

My aunt has been on a pacemaker for almost a decade now. Recently, she had to have a procedure to fix something inside that was broken and there was no non-invasive way to fix the problem. I am trying to imagine a scenario where the problem was software related and the device was out of warranty and some kind of upgrade had failed. If there were open-source fixes for the problem, I doubt the family would feel comfortable about using it. 

It is a huge judgement call for someone to make and if that decision impacts your mother's life for instance, chances are the person will err heavily on the side of caution. I would imagine, my cousin would do exactly what he done in the case of the equipment malfunction - go the most fool-proof route, replace the whole thing if the doctor told that would definitely resolve the issue. That same doctor would not be asked for his advice on the the open-source software solution to the problem. It is a difference between what can be seen and believed by the average person versus faith in something that cannot. 

Comments

Popular posts from this blog

Part Liberated Woman

An expat desi friend and I were discussing what it means to return to India when you have cobbled together a life in a foreign country no matter how flawed and imperfect. We have both spent over a decade outside India and have kids who were born abroad and have spent very little time back home. Returning "home" is something a lot of new immigrants like L and myself think about. We want very much for that to be an option because a full assimilation into our country of domicile is likely never going to happen. L has visited India more often than I have and has a much better pulse on what's going on there. For me the strongest drag force working against my desire to return home is my experience of life as a woman in India. I neither want to live that suffocatingly sheltered existence myself nor subject J to it. The freedom, independence and safety I have had in here in suburban America was not even something I knew I could expect to have in India. I never knew what it felt t

Cheese Making

I never fail to remind J that there is a time and place for everything. It is possibly the line she will remember me by when I am dead and gone given how frequently she hears it. Instead of having her breakfast she will break into a song and dance number from High School Musical well past eight on Monday morning. She will insist that I watch and applaud the performance instead of screaming at her to finish her milk and cereal. Her sense of occasion is seriously lacking but then so is mine. Consider for example, a person walks into the grocery store with the express purpose of buying detergent because they are fresh out of it and laundry is only half way done. However instead of heading straight for detergent, they wander over to the natural foods aisle and go berserk upon finding goat milk on sale for a dollar a gallon. They at once proceed to stock pile so they can turn it to huge quantities home-made feta cheese. That person would be me. It would not concern me in the least that I ha

Under Advisement

Recently a desi dude who is more acquaintance less friend called to check in on me. Those who have read this blog before might know that such calls tend to make me anxious. Depending on how far back we go, there are sets of FAQs that I brace myself to answer. The trick is to be sufficiently evasive without being downright offensive - a fine balancing act given the provocative nature of questions involved. I look at these calls as opportunities for building patience and tolerance both of which I seriously lack. Basically, they are very desirous of finding out how I am doing in my personal and professional life to be sure that they have me correctly categorized and filed for future reference. The major buckets appear to be loser, struggling, average, arrived, superstar and uncategorizable. My goal needless to say, is to be in the last bucket - the unknown, unquantifiable and therefore uninteresting entity. Their aim is to pull me into something more tangible. So anyways, the dude in ques